“We must accept finite disappointment, but never lose infinite hope." Martin Luther King, Jr.
ASH1L disorder is rare but hopes must be limitless
Care4ASH1L is a parent-led support group for families and patient advocates of ASH1L.
What is Care4ASH1L?
Care4ASH1L was started in 2020 with the hope of bringing ASH1L families together and take initiatives to advance researches on ASH1L disorder.
Why did we start?
We approach researchers in the hope that they will expand research on ASH1L disorders and look deeper for associated challenges.
What do we do?
Connect ASH1L Families & Patient Advocates
Approach Researchers to advance ASH1L studies
Encourage families to participate in ASH1L research
Help raise funds to support ASH1L research