EVENTS

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JOIN TEAM CARE4ASH1L

Care4ASH1L is now an official and registered partner of the 2022 TCS Toronto Waterfront Marathon. 

FOR REGISTRATION

Please click the button below for registering with the 2022 TCS Toronto Waterfront Marathon and to support Care4ASH1L 

FOR DONATION - THROUGH RACE ROSTER

You can donate to Care4ASH1L and help us accomplish our mission by clicking the button below

 

WHY JOIN TEAM CARE4ASH1L?

Why do we need the funds?

Care4ASH1L is dedicated to accelerating the research on ASH1L and we need the funds in order to accomplish our mission. Currently, the ASH1L community lacks information on -

  • The genotype-phenotype relationship 

  • The phenotypical diversity associated with the ASH1L related disorders

  • Clinical phenotype mapping for ASH1L affected patients

  • Natural History Study - a comprehensive database on ASH1L families

Care4ASH1L intends to bridge the gap between the ASH1L affected families and the research realm. We want the ASH1L community to connect and collaborate with the researchers in order to foster ASH1L research advances. 

How will they be utilized?

Care4ASH1L will donate all the funds raised towards the research activities being conducted in Brown University (Rhode Island, USA) under the leadership of Dr. Judy Liu. The funds will be utilized for the following purposes - 

  • Cover the travel and accommodation costs for ASH1L families to participate in pre-clinical studies

  • Recover the costs associated with conducting tests on ASH1L affected patients, including but not limited to, -

    • Conduct EEGs ​Salary of the epileptologist

    • Conduct neuropsychoanalysis & Salary of Paediatric Neuropsychologist

  • Develop a comprehensive data on the clinical phenotypes of ASH1L for the Natural History Study​

The procurement & encapsulation of this data will help eliminate the enigma of ASH1L and encourage researchers to find a cure for ASH1L related disorders.

HOW DO I SUPPORT YOUR CAUSE?

As a charity, we rely purely on your benevolence. Please consider donating to support our mission.

Donate on Race Roster

Care4ASH1L has officially partnered with Race Roster to accept donations for the 2022 TCS Toronto Waterfront Marathon. Click below to donate

Donate on CanadaHelps

If you are a Canadian resident, then you can also donate to us on CanadaHelps. Click the button below.

International Donors

Care4ASH1L has partnered with PayPal and GoFundMe to help receive donations from international donors.