Finding Inspiration in Every Turn
Care4ASH1L is a not-for-profit organization (Corporation Number: 1283737-4) incorporated federally in Canada, as per Canada Not-for-profit Corporations Act. We are dedicated to advancing research into understanding the molecular mechanism of ASH1L and expedite development of therapeutics for ASH1L gene disorder. We intend to raise funds for important research projects at leading universities in North America and Europe to enable focused research for ASH1L.
The journey of Care4ASH1L began its roots in early 2020 when two mothers, with ASH1L children, met on a social media platform. They were desperate to help their children and were seeking ways to understand the diagnosis of ASH1L. The idea of Care4ASH1L struck when they heard a CBC podcast of another rare disease family. Thus began the odyssey of Care4ASH1L.
Meet The Board of Directors
Kimberly is from B.C., Canada and has a son with ASH1L mutation
Chair of Board & President
Mukti is from Toronto, Canada and has a son with ASH1L mutation
Secretary & Treasurer
Kevin is from Ohio, U.S.A. and has a daughter with ASH1L mutation