Meet Our Board of Directors
Care4ASH1L is led by families, advocates and professionals committed to advancing research, strengthening awareness and creating a better future for people affected by ASH1L.
Kimberly Gauthier
President
Kimberly is from B.C., Canada and has a son with ASH1L mutation
Kevin Prenger
Secretary
Kevin is from Ohio, U.S.A. and has a daughter with ASH1L mutation.
Jeffrey Kent, CPA, CA, DBA
Treasurer
Dr. Jeff Kent brings 35 years of leadership in business, accounting and higher education, using his expertise to support organizations that strengthen communities and create meaningful impact.
Marisa Bertoli
Director
Marisa is a strategic marketing and communications leader who combines a background in biology and research with creative insight to strengthen advocacy, awareness and philanthropic growth in rare disease
Jeanine Alana McFarlen
Director
Jeanine is from B.C., Canada and her older son has autism. She always had a caring and compassionate nature and joining Care4Ash1L felt like a calling.
Dr. Catherine Strandt
Director
Dr. Catherine Strandt is a rare disease researcher and patient advocate whose work in genetics, translational research and project management advances treatments and strengthens support for rare disease communities.
Charitable Registration Information
Care4ASH1L is a federally incorporated Canadian not-for-profit organization and registered charity under the Canada Not-for-profit Corporations Act.
We are dedicated to advancing research into the molecular mechanisms of ASH1L-related disorders and accelerating the development of effective treatments. Through fundraising and collaboration, we support promising research projects at leading universities across North America, helping build the scientific knowledge needed to move discoveries toward meaningful therapies.
Charitable Registration Number: 77069 0261 RR0001