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ASH1L is rare and Care4ASH1L intends to raise awareness. This requires better Google search & SEO.
The objective of Care4ASH1L is to encourage researchers & scientists to investigate ASH1L gene variants.
Care4ASH1L requires a digital footprint by means of keeping the website up & running.
In future, Care4ASH1L may organize meetings for ASH1L families to meet up with researchers, scientists or pharma executives.