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UPDATES

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NATURAL HISTORY STUDY ONGOING

Care4ASH1L in collaboration with Brown University has initiated work on creating a Natural History Study to encapsulate the disease related information from ASH1L families. The data collected would help identify and stratify the phenotypes associated with ASH1L, leverage research in the optimal direction and ensure clinical trial readiness. 

COST : None

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LATEST NEWS

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CFJC Midday - Kamloops

On 12 April 2023, Kimberly Gauthier, Vice President - Care4ASH1L, spoke at length on a TV show about ASH1L and Care4ASH1L.

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