GENERATE AWARENESS

ASH1L is rare and Care4ASH1L intends to raise awareness by listing ASH1L & Care4ASH1L on various platforms like NORD, CORD, Global Genes, Disease Info Search, RareDiseaseDay.org. This may require membership. 

FUTURE RESEARCH

The objective of Care4ASH1L is to encourage researchers & scientists to investigate ASH1L gene variants. We want to support research projects for clinical trials, drug development, Gene Therapy, ASO. 

MAINTAIN WEBSITE

Care4ASH1L requires a digital footprint by means of keeping the website up & running. Additionally, the site requires better SEO for listing the site high up on Google Search.

ORGANIZE MEETINGS

In future, Care4ASH1L may organize meetings for ASH1L families to meet up with researchers, scientists or pharma executives.

INVEST ON PATIENT REGISTRY

Develop Participant-led Patient Registry to identify disease cohorts, biomarkers, understand phenotypical landscape & disease etiology, expedite research and encourage clinical trial recruitment with ease and efficiency.